Within ERNICA we have an active group of patient representatives involved in ERNICA activities. In all diagnostic groups covered in ERNICA, the patient's voice is represented through the involvement of ePAG members. The first official ERNICA patient support group representatives' meeting was held in Paris in June 2018. Both ERNICA clinicians and patient representatives attended this meeting.
|EAT||Graham Slater||United Kingdom||ePAG role|
|EAT||Anke Widenmann-Grolig||Germany||ePAG role|
|EAT||JoAnne Fruithof||The Netherlands||ePAG role|
|CDH UK||Beverley Power||United Kingdom||ePAG role|
|SoMA||Nicole Schwarzer||Germany||ePAG role|
|SoMA||Annette Lemli||Germany||ePAG role|
|Amorhi||Duccio Cavalieri||Italy||ePAG role|