EURORDIS Black Pearl Awards 2022 & Photo award

Posted on 10 January 2022


EURORDIS Black Pearl Awards 2022

The eleventh edition of the Black Pearl Awards will take place online on TUESDAY, 8th FEBRUARY 2022 from 18:00 until 19:30 CET and will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more.

The February event is an annual awards ceremony launching the month of Rare Disease Day. Since 2012, EURORDIS Rare Diseases Europe has organised this event to recognise the major achievements and outstanding commitment of patient advocates, patient organisations, policymakers, scientists, companies, and media who strive to make a difference for the rare disease community.

Click here to find out more and to register. 

Photo Award 2022

The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond.

The contest is open to all nationalities, ages, and diseases. Every year, hundreds of people from all around the world submit their photos, each reflecting the drive of people living with a rare disease. Submissions for the 2022 Photo Award will be open until 16 January 2022.

Click here to submit your photo.