On Monday 14th March 2022, the 24 European Reference Network (ERN) Coordinators issued a statement of support to people with rare diseases and complex conditions affected by the current war in Ukraine.
As detailed in this statement, the ERNs have launched a new dedicated website (accessible in most EU languages, in Ukrainian and in Russian) and social media campaign to support patients with rare diseases from Ukraine and their care providers. Each European Reference Network (ERN) is focused on a different rare and complex disease area. Each ERN is made up of expert healthcare professionals from specialised healthcare providers across Europe.
The dedicated website provides a contact point for each ERN, a list of member hospitals and useful links. We are here to help.