From 17-19 May SoMA e.V. [ www.soma-ev.de ] held their annual congress meeting in Berlin. Two of ERNICA's patient representatives represent this patient organisation which supports patients with anorectal malformations and hirschsprung disease. For both of these diseases, a working group exists between ERNICA and another ERN, eUROGEN, as there is overlapping expertise.
More than 130 children, parents and adult patients with anorectal malformations or hirschsprung disease attended this congress. There were lectures and discussions by 70 german and international speakers on topics such as centralization, the European reference networks, follow up, continence and urological problems and the Microbiome.