Experts by experience

Patient representation is core to ERNICA. The involvement of patient representatives in network activities is hugely valued. They are experts by experience. Below are the names of the current patient representatives involved in the network.

 Patient organisation

 Representative

 Representing

 EAT

 Graham Slater

 Esophageal Atresia 

 EAT

 Anke Widenmann-Grolig

 Esophageal Atresia 

 EAT

 JoAnne Fruithof

 Esophageal Atresia 

 CDH UK

 Beverley Power

 Congenital diaphragmatic hernia

 SoMA

 Nicole Schwarzer

 Hirschsprung Disease 

 SoMA

 Annette Lemli

 Hirschsprung Disease 

 Amorhi

 Duccio Cavalieri

 Hirschsprung Disease