Are you a patient or family member of a child with Intestinal Failure who is reliant on total parenteral nutrition (TPN)? Do you avoid travelling abroad in case of not having access to specialist care at times of need?
You’re not alone! The 2019 ERNICA annual meeting featured an insightful presentation by two parents of children with intestinal failure, both of whom are reliant on total parenteral nutrition (TPN) as a method of feeding. They presented their personal challenges in regards to travelling abroad with their children and voiced their concerns about not having access to specialist, emergency care (if needed) whilst abroad. ERNICA recognises these challenges and has developed an online map tool so that you can easily identify specialist centres across Europe that meet the following criteria:
- Centre has a minimum of 10 (paediatric) patients on long-term home TPN and delivers TPN to these patients
- Centre can place central venous lines for TPN children
Knowledge of this may help you to prepare for a trip abroad.
In 2022 the online map was expanded with information on care for adults. By using the filter on the vacation tool, centers providing care for children or adults can be selected.
A patient's local healthcare provider can make use of the following templates to provide a record of the medical history/any clinical precautions. These can accompany you on your trip abroad in case emergency care is required.
The following TPN checklist can also be used when preparing for your trip abroad.
- TPN travel checklist (PDF)
Access the map tool below*!
Centres will be continually added to the map as and when appropriate.
*This tool is for informative purposes only. The purpose is for patients/families/carers to be able to easily identify specialist centres abroad. ERNICA is not responsible for the organisation or provision of care. ERNICA is not an emergency service. ERNICA cannot be contacted to discuss clinical cases outside of the Clinical Patient Management System (CPMS).