Patient versions of guidelines/consensus statements

For some rare or complex conditions, there are no clinical guidelines or consensus statements available at present. For some diseases, these are available but some may require review and revision.

ERNICA seeks to endorse, develop or revise existing clinical guidelines and consensus documents to ensure clinical recommendations are made available to clinicians, patients and their families based on research of the highest quality.  As part of this dissemination, ERNICA seeks to create tailored versions of guidelines/consensus statements for patients and families. Click here to find out more.