For Clinicians

This page contains information that may be of importance to clinicians in the field of rare diseases or any other field of healthcare. ERNICA works on different activities where experts from the network participate or contribute to.

WHAT WE DO

Guidelines

This area of work refers to activities related to the development, revision and implementation of care standards

Training and capacity building

Find more information here about ERNICA's training initiatives.

Clinical management system

The Clinical Patient Management System is a web-based clinical software application allowing healthcare providers from all over the EU to work together virtually.

Research

ERNICA aims to facilitate and foster research initiatives across Europe and stimulate multi-centre collaboration.

Training and capacity building

Coming soon.

ERNICA also engages in live joint educational webinars with eUROGEN (European Reference Network for rare and complex urogential diseases), EUPSA (European Paediatric Surgeons' Association) and Research Collaboration Webinars. You can find recorded versions of these webinars on our YouTube channel..

The joint webinars with eUROGEN are specifically focused on Anorectal Malformations and Hirschsprung's Disease ('colorectal series'). For more information on registration click here.