The Azienda Ospedaliera – Università di Padova (AOP) is a third level care centre and its different Units allows patient centered care with particular attention to the quality of life and continuity of care. AOP is for Padua University the reference teaching Hospital, where the School of Medicine and Surgery is based. There are more than 7.500 prelauream students within the School of Medicine (nearly 3.000 students of medicine) and nearly 1.500 postlauream students (within them: more than 1.300 residents of 45 school of specialization). There are 45 Specialization Schools, 24 Masters, 27 degree courses within the School of Medicine of Padua University.
The Azienda Ospedaliera di Padova has a H24 emergency department for adults (85.000 accesses/year) and a H24 dedicated emergency pediatric department (24.000 accesses/year). Since AOP is a tertiary referral hospital, it is able to provide highly specialized equipment and facilities: Pediatric Unit, Adult and Pediatric Surgery, Radiology, Interventional radiology and Radiotherapy, Certified laboratories; a full esophageal Lab, Intensive Care Unit, Emergency Unit; High Resolution manometry and ph-impedenzometry, conventional and NGS. Moreover Azienda Ospedaliera di Padova has a Gastroenterology Unit, several surgery units and a Pediatric Clinic that allow H24 patient evaluation and, in case of need, admission directly from the Emergency Room. Advanced medical genetics and biobanking are routine parts of diagnostic assessments along with experienced pediatric pathologists. As part of the AOP the Pediatric Surgery department provides all aspects of multidisciplinary pediatric surgical care and required supportive medical services. The multidisciplinary teams for the care and follow-up of all the diseases covered by ENRICA is constituted by:
Members have the level of expertise and specialization required by the multidisciplinary team and roles of each component are well defined. We offer high-quality pediatric surgical treatment of all congenital anomalies within the specialties of general, cardiac, hepato-biliary, airway, ear-nose-throat, neuro, and orthopedic surgery. The department is a national reference centre for the treatment of benign and malignant tumors of the neonatal and pediatric age. AOP is a regional reference centre for all the GI and respiratory tract malformations, abdominal wall and diaphragm. In fact, the HPC has one of the world’s larger series of these contitions in the country and here vpatients are diagnosed, staged and treated according to all the internationally recognized criteria and technologies and managed from prenatal phase to adulthood respecting all the patient needs.
In particular emerging techniques are applied to the conditions (neonatal laparoscopy and thoracoscopy, Extracorporeal Membrane Oxygenation for CDH). The centre is involved in national and European groups of Studies concerning soft tissues sarcomas, liver tumors and rare tumors. The HPC is a regional centre for Paediatric and Adult kidney transplant, having the highest number of paediatric kidney transplant (over 500/yr) in the country. The members of multidisciplinary teams are also part of the scientific national and international societies contributing to the improvement of knowledge and patient’s education/information together with national and international patient’s association. Families are actively informed and involved with decision making along the care process and follow-up, which often continues into adulthood.
A dedicated rare diseases information web-site (http://malattierare.regione.veneto.it) is maintained and continuously updated. It provides summaries for all the RD listed in the national RD laws (total number of RD entities n=3.100) and includes information on the care network organization and pathways for RD patients. RD Interregional Information System is a web-based registry, used by all clinicians working in RD Centres, other local hospitals, local health districts and pharmaceutical services (hospital and territorial ones); electronic health records are filled by health professionals involved in patients’ care allowing the electronic transmission of prescriptions and care plans. Moreover, patients with RD are offered to be included in International Clinical Trials with experimental drugs and procedures approved by National institution and Local Ethical Committee. Outcomes of patients treated with standardized therapy and experimental drug are published in peer-reviewed journals. Clinical outcomes in terms of morbidity, survival rates, loss of function, quality of life, response to treatment are regularly collected, at least once or twice per year, and they are included in anonymized disease-specific databases.