Our center is one of only two centers in the Netherlands that provide home TPN for pediatric and adult patients with Intestinal Failure, of any cause. Currently our expertise center covers the care for 205 patients with intestinal failure (children and adults). Moreover, our center is the only expertise center and national referral center in The Netherlands for Acute Intestinal Failure (TPN dependence for more than 6 months but less than 18 months) with a case load of> 50 new patients per year.
Patients with intestinal failure with various underlying diseases (see Q7). Care is in a multidisciplinary team (endocrinologist-TPN specialist, surgeon, specialised nurses, pharmacist, dietician, and in close collaboration with gastroenterologist/hepatologist, interventional radiologist, genetic counseling etc). Intestinal failure is caused by short bowel syndrome or CIPOS- Chronic Intestinal Pseudo-Obstruction syndrome for the majority of our chronic intestinal failure patients. Most care is chronic, but the acute intestinal failure patients go into a 'bridging to surgery' program with enhanced physical, nutritional / metabolic and psychological care in a home-care setting, or if admitted to the referring hospital make the transition to home under the supervision of our team.
Currently, our center cares for 32 pedriatic patients (age 0- 18 years) with intestinal failure for which they are dependent on home TPN. Care is in a multidisciplinary team (pediatric gastro-enterologist, surgeon, hematologist, specialised nurses, pharmacist and dietician, and in close collaboration with gastroenterologist/hepatologist, interventional radiologist, genetic counseling etc). Diagnoses are all of the above (see Q7). Care is mostly chronic, but also short term (bridging to surgery) care is provided. TPN is ready to use (2 or 3 chamber bags) or tailor made if ready to use formula's don't meet the
nutritional needs of the patients.