There are 20 European hospitals involved in ERNICA, from 10 member states. It is a multi-disciplinary network of highly specialised healthcare professionals. Patient representatives also play an active role in the network and its activities.
Each ERN has a coordinating healthcare centre. ERNICA is coordinated by Erasmus MC, Rotterdam. Prof. dr. René Wijnen is the coordinator and Dr. Tomas Wester is the deputy. Renée de Ruiter and Olivia Spivack are the project managers.
There are two diagnostic areas covered by ERNICA:
1. Malformations of the digestive system
[With working groups for esophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases]
2. Malformations of the diaphragm and abdominal wall
The network engages in eight areas of work, which are applicable to both diagnostic groups. (Management activities, Dissemination activities, Evaluation activities, Standards of Care, Training, Research, eHealth and Fetal medicine)
Each diagnostic group is co-coordinated by two HCP members.
|CDH-AWD||Prof. dr. Dick Tibboel||Erasmus MC Rotterdam|
|Prof. dr. Lucas Wessel||University Hospital Mannheim|
|Oesophageal malformations||Prof. dr. Benno Ure||Hannover Medical University|
|Prof. dr. Frederic Gottrand||Lille University Hospital|
|Intestinal diseases||Prof. dr. Mikko Pakarinen||Helsinki University Hospital|
|Prof. dr. Jean-Pierre Hugot||CHU Paris - Hôpital Robert Debré|
|Gastroenterological diseases||to be decided|
|Intestinal failure||Prof. dr. Marja Boermeester||AMC Amsterdam|
|Prof. dr. Olivier Goulet||CHU Paris - Hôpital Necker|
All ERNICA activities are coordinated by one or two HCP members.
|Management and Dissemination||Prof. dr. René Wijnen||Erasmus MC Rotterdam|
|Evaluation||Prof. dr. Tomas Wester||Karolinska University Hospital|
|Standards of Care||Dr. Gunnar Aksnes||Oslo University Hospital|
|Training||Dr. Janne Suominen||Helsinki University Hospital|
|Research||Prof. dr. Laurent Storme||Lille University Hospital|
|eHealth||Dr. Francesco Fascetti Leon||University of Padua|
|Fetal medicine||Prof. dr. Jan Deprest||Univerity Hospital Leuven|
|Dr. Alexandra Benachi||GHU Paris Sud - Hôpital Antoine Béclère|