European Reference Networks (ERNs) are virtual networks of healthcare providers from across Europe. The networks aim to pool together expertise on complex and rare diseases and concentrate knowledge and resources. There are 24 ERNs, each focusing on a particular disease area. ERNICA covers rare inherited and congenital digestive disorders, including gastro-intestinal disorders.
|ERN BOND||European Reference Network on bone disorders|
|ERN CRANIO||European Reference Network on craniofacial anomalies and ear, nose and throat (ENT) disorders|
|Endo-ERN||European Reference Network on endocrine conditions|
|ERN EpiCARE||European Reference Network on epilepsies|
|ERKNet||European Reference Network on kidney diseases|
|ERN-RND||European Reference Network on neurological diseases|
|ERNICA||European Reference Network on inherited and congenital anomalies|
|ERN LUNG||European Reference Network on respiratory diseases|
|ERN Skin||European Reference Network on skin disorders|
|ERN EURACAN||European Reference Network on adult cancers (solid tumours)|
|ERN EuroBloodNet||European Reference Network on haematological diseases|
|ERN eUROGEN||European Reference Network on urogenital diseases and conditions|
|ERN EURO-NMD||European Reference Network on neuromuscular diseases|
|ERN EYE||European Reference Network on eye diseases|
|ERN GENTURIS||European Reference Network on genetic tumour risk syndromes|
|ERN GUARD-HEART||European Reference Network on diseases of the heart|
|ERN ITHACA||European Reference Network on congenital malformations and rare intellectual disability|
|MetabERN||European Reference Network on hereditary metabolic disorders|
|ERN PaedCan||European Reference Network on paediatric cancer (haemato-oncology)|
|ERN RARE-LIVER||European Reference Network on hepatological diseases|
|ERN ReCONNET||European Reference Network on connective tissue and musculoskeletal diseases|
|ERN RITA||European Reference Network on immunodeficiency, autoinflammatory and autoimmune diseases|
|ERN TRANSPLANT-CHILD||European Reference Network on Transplantation in Children|
|VASCERN||European Reference Network on Rare Multisystemic Vascular Diseases|
With their consent, individual healthcare providers can refer a patient to a particular ERN in order to access expert knowledge and advice from across Europe. Consultations are carried out through the Clinical Patient Management System (CPMS), a web-based clinical software application allowing healthcare providers from all over the EU to work together virtually to diagnose and treat patients with rare, low prevalence and complex diseases.
No country alone has the knowledge and capacity to treat all rare and complex diseases. ERNs offer patients and doctors from across Europe access to the best expertise and timely exchange of life-saving knowledge, without having to travel to another country.
When and why were the ERNs set up?
The first ERNs were launched in March 2017. Their initiation and development emerged from EU legislation – Directive 2011/24/EU on patients’ rights in cross-border healthcare. This directive recognises the value of voluntary cooperation between healthcare centres for specialised care.
What is expected from the ERNs?
It is expected that the ERNs will:
ERNs seek to collaborate on the following: