ERNICA

ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies.

The network was officially launched in March 2017. There are 20 European hospitals involved in ERNICA, from 10 EU member states. It is a multi-disciplinary network of highly specialised healthcare professionals. Patient representatives also play an active role in the network and its activities.

ERNICA aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. Such health goals include:

  • Development of clinical skill/clinician access to expert advice
  • Increased patient access to high-quality expert care/advice --> accurate diagnosis & high-quality treatment
  • Increased diagnosis-specific information available to healthcare professionals, patients and their families

In doing so, ERNICA also seeks to reduce health inequalities across Europe by standardising practices and making high-quality care, information and resources accessible to healthcare providers, patients and their families across Europe, regardless of where they are located.