ERNICA is the European Reference Network for rare inherited and congenital digestive disorders, including gastro-intestinal disorders. These disorders manifest early in life and require multi-displinary care and long term follow up. Many individuals with a rare inherited and congenital digestive disorder across Europe may struggle to get a diagnosis or treatment. Reasons for this may include: a lack of clinician awareness and knowledge of the treatment options, limited information available for both patients and healthcare professionals and/or an absence of professional skill in diagnosing and treating these rare or complex conditions.
ERNICA seeks to facilitate cooperation between multidisciplinary experts across Europe to support the provision of high quality care.
The network seeks to: