ERNICA is the European Reference Network for rare inherited and congenital digestive disorders, including gastro-intestinal disorders. There are 20 European hospitals involved in ERNICA, from 10 member states. It is a multi-disciplinary network of highly specialised healthcare professionals. Patient representatives also play an active role in the network and its activities.

The network seeks to:

  • Promote initial care for patients via strengthened referral systems
  • Provide a resource-hub for patients with inherited and congenital digestive disorders and their families across Europe
  • Provide independent and high quality educational opportunities to medical, nursing and other healthcare professionals in inherited and congenital digestive disorders throughout Europe
  • Deliver high standards of care
  • Build capacity where there is lack of knowledge and infrastructure;
  • Connect healthcare professionals, scientists, patients and the public to improve quality of care;
  • Open a dialogue with policy-makers and national authorities to overcome existing regulatory barriers for the provision of cross-border care