Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atrésie de L’Oesophage) has called for applications for the Prix Fanny-Selena (prior to 2017, the Prix Fanny) in memory of two girls who passed away as a result of this disease.The prize has enabled research to be initiated with a clear focus on the esophagus; an essential, functional but under-researched organ.Interested to find out more and/or apply? Visit the website. Applications are open until 15 May.
How can an anorectal malformation (anal atresia) or Hirschsprung's disease affect sexuality? What can be different than in others without these conditions? What can you encounter and how can you deal with it? Answers to these and other questions about intimacy, sex, sexuality and sexual development can be found on the new ERNICA/eUROGEN sexual support website [In Dutch and English]. This website is designed to support patients with Hirschsprung's disease and anorectal malformations, their parents and healthcare professionals involved in their care. The original version of this website (in Dutch) was developed by project group 'SO' (Seksuele Ondersteuning anorectale malformatie & ziekte van Hirschsprung) in close collaboration with patients and specialist practitioners in the Netherlands. See research paper by Violet Petits-Steeghs et al. (2020) for more information on the project. The Dutch website has been translated into English and adapted (where relevant) for an international audience. Do you want to help us improve this website or give feedback? ERNICA and eUROGEN are calling for website users to (anonymously) evaluate the use, applicability, expected empowerment effect and experience of this sexual support website tool on healthcare professionals, patients, parents and other relations on an international level. This evaluation aims to identify areas where the website can be improved to ensure it is fit for purpose and meets the needs of users. It may also help to shape new resources or initiatives in the future. Find out more here!
What are the challenges and pitfalls in international clinical trials?The first ERNICA research collaboration webinar is taking place on Wednesday 1 February, 16.00 - 17.30 CET to discuss this topic.Presented and moderated by: Dr. Martin Lacher (University of Leipzig, DE) and Dr. Roel Bakx (Amsterdam UMC, NL).Speakers: Anne-Fleur van Hal (Erasmus MC), Dr. Martin Lacher, together with Dr. Omid Madadi Sanjani (Hannover Medical School), Dr. Monique Al (Central Committee on Research Involving Human Subjects, The Netherlands)We invite ERNICA researchers and healthcare professionals interested in this topic to join and participate! Find out more and register here.