ERNICA

ERNICA

ERNICA

ERNICA

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News

EURORDIS Black Pearl Awards 2022 & Photo award

10 January 2022

  EURORDIS Black Pearl Awards 2022 The eleventh edition of the Black Pearl Awards will take place online on TUESDAY, 8th FEBRUARY 2022 from 18:00 until 19:30 CET and will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more. The February event is an annual awards ceremony launching the month of Rare Disease Day. Since 2012, EURORDIS Rare Diseases Europe has organised this event to recognise the major achievements and outstanding commitment of patient advocates, patient organisations, policymakers, scientists, companies, and media who strive to make a difference for the rare disease community. Click here to find out more and to register.  Photo Award 2022 The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The contest is open to all nationalities, ages, and diseases. Every year, hundreds of people from all around the world submit their photos, each reflecting the drive of people living with a rare disease. Submissions for the 2022 Photo Award will be open until 16 January 2022. Click here to submit your photo.

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ERNICA newsletter (Issue 10)

22 December 2021

  The ERNICA newsletter (Issue 10: December 2021) is now available to read.  Click here to read the latest ERNICA news, including information on the integration of new ERNICA members in 2022.   

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Congenital Diaphragmatic Hernia International Symposium 2022

22 December 2021

  The Congenital Diaphragmatic Hernia International Symposium 2022 is taking place in Glasgow, UK on 27-29 April 2022. Building on the success of previous Symposia, CDH 2022 is an opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH 2022 is for all international researchers, clinicians, patient and family organisations and colleagues who are passionate about CDH research and clinical care. For more information on the programme, registration and abstract submission visit the symposium website: www.cdh2022.com

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