European Reference Network



What are ERNs?

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment and a concentration of knowledge and resources. To review a patient’s diagnosis and treatment, ERN coordinators will convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools. The knowledge will travel rather than the patients or doctors. This will facilitate equal access to expert advice and best treatment options. It will increase patient’s chances for better, more effective and more efficient treatment.

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What is ERNICA?

The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 Member States. Our network covers rare inherited and congenital digestive disorders, including gastro-intestinal disorders, which have in common early manifestation in life and the need for multidisciplinary care and long term follow-up. For these complex and rare diseases, pooling the available resources at European level is a necessity to spur advancements in care and treatment.

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Upcoming events
21 November 2018 4th ERN conference

Brussels, Belgium

11 April 2019 3rd ERNICA meeting

Padua, Italy