ERNICA

ERNICA

ERNICA

ERNICA

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News

Next eUROGEN-ERNICA webinar!

2 June 2021

  The next eUROGEN-ERNICA webinar is taking place on 22nd June at 18.00 CEST on: Hydrocolonic Sonography and self-management in patients with incontinence - tools to facilitate Bowel Management This webinar will be presented by Dr. Stefanie Märzheuser from Charité Universitätmedizin Berlin and Annette Lemli, co-chairwoman of SoMA, the German patient organisation for anorectal malformations (ARMs) and Hirschsprung Disease. Annette Lemli is also a patient representative for ERNICA. The webinar is aimed at both healthcare professionals and patient groups. Despite good surgical repair of ARMs and optimal pull-through in Hirschsprung disease, impaired bowel function is a common issue. Bowel Management and transanal irrigation are established means to control symptoms of incontinence and increase patients’ quality of life. Hydrosonography assesses the amount of fluid needed to clean the colon from the anal canal to the cecum. Sonography is performed after colonic preparation and is useful for the detection of incomplete stool evacuation. Lack of radiation exposure makes it a useful option for assessment and follow-up of therapeutic efforts, both in pediatric and older patients. The ability to tailor treatment to individual patients keeps hospitalization to a minimum. With the help of self-management, we can make children independent from parents and carers prior to puberty.The ARM webinar series covers all aspects of paediatric colorectal surgery, in particular (congenital) anorectal malformations. They are joint presentations between ERNs eUROGEN and ERNICA, and are supported by the European Paediatric Surgeons’ Association (EUPSA). Register (for free) here! 

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31st European Dysmorphology Online Workshop

3 May 2021

Registrations for the 31st European Dysmorphology Online Workshop are open! The event will be held on 22-25 September 2021 and is supported by ERN ITHACA.This workshop is an excellent way to bring young clinical geneticists and trained dysmorphologists together to share their professional experiences and present their clinical challenges. Young Geneticists are encouraged to submit a presentation!  Registration Deadline: June 18th. Program & Registration tool following this link: https://ern-ithaca.eu/eurodysmorpho/registration-abstract/  

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Latest news on the STEPS-EA trial

31 March 2021

The STEPS-EA trial is an ERNICA multi-centre randomised controlled trial looking at intralesional steroid injections to prevent refractory strictures in patients with esophageal atresia. The trial involves 1:1 randomization to injection with 10 mg/ml TAC (Kenacort-A 10) prior to balloon dilatation and balloon dilatation without any injection. Click here to access the latest STEPS-EA updates, via their newsletter (March 2021 issue) For more information about the STEPS-EA trial, you can watch the explainer video on our YouTube channel. 

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